Rare Disease Center of Excellence

Rare Disease Front Door

Leveraging system wide resources to provide a seamless entry into and multi-disciplinary journey throughout the patient care journey.

To learn more about our clinical offerings, visit our Rare Disease Comprehensive Care page.

 

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Image showing men, woman and handicapped people are welcome through a doorway

Collaborative Care

  • Genetic Testing
  • Scheduling
  • Initial Provider Evaluation/Exam
  • Imaging
  • Lab
  • Treatment

 

  • Pharmacy
  • Specialist 2 Evaluation/Exam
  • Specialist 3 Evaluation/Exam
  • Securing Financial Support
  • Social Work
  • Health Coach

Rare Disease ​Center of Excellence

Leveraging system wide resources to provide a seamless entry into and multi-disciplinary journey throughout the patient care journey.

To learn more about our clinical offerings, visit our Rare Disease Comprehensive Care page.

  • Rare disease navigators
  • On-line scheduling and virtual appointments
  • Rapid access to world-class rare disease experts
  • Comprehensive care model
  • Research & clinical trials
  • Fairview Specialty Pharmacy

Credentials

  • NORD COE Designation
  • URAC Rare Disease Pharmacy
  • 8TH in NIH funding for pediatrics
  • 46 disease studies in progress